Update on Last appt/ Upcoming appt

At my last appt was Shawn's mom Debbie, Shawn, and of course the main event.... Me! So we had to drive to Tampa because no Neurosurgeon right here in Fort Myers would take my case because they don't know if I have had this tumor since I was a kid or if it is cancer. So I met with this very skinny Italian guy named Dr. Siviero Agazzi who honestly reminds if the Italian car off of the Cars movie lol.

Anyways he comes in and is giving me an hour worth of information that quite honestly was hard for me to take in and since its illegal to record a convo with the doc I was forced to go into space and hope someone caught all the info that I missed. But pretty much what I got out of this was.... That I may have had this my whole life and no eye doctor can detect it because it is so far back on the optical nerve that you just can't see even with dilation. Next I have two other tumors (very small of course) that run along the optical track towards the back of the brain. We pretty much have it narrowed down to either I have Neurofibromatosis type I or 2 or I have cancer.

Course of treatment on this? Well.... If it is Neurofibromatosis I will do radiation 5-10 mins a day 5 days a week for 5-6 weeks. Then reevaluate after treatment. If its cancer I have to undergo chemo and radiation. Which means I may not be going back to work anytime soon.

So for my next appt on March 20th is going to be as follows:

Tuesday, March 19, 2013
4PM You will have an MRI at Tampa General Hospital Radiology

Wednesday, March 20, 2013
7AM You will have a CT scan at Tampa General Radiology
9AM You will have a meeting with Dr. Siviero Agazzi at the USF health building to review MRI, CT and surgery
10AM You have an appointment with our Nurse Practitioner, Melissa Byrd for the 1st part of your pre-op
Directly after your appointment with our Nurse Practitioner, You will have the 2nd portion of your pre-op at Tampa General Hospital, check in
345PM You have an appointment with Dr. Ilia Leyngold to consult before surgery

So yes once again I have to undergo surgery only thing is that this one in a little more intense. Fortunately they are just going in for a biopsy but there in only one of two ways you can go. Either cut along my eye lidish area and go in over the top of the eye or they have to shave half of my head cut along front to back on the side of my head come back around towards the top of my head then peel my skin down and go in that way. CRAZY!!!! Hoping to not have to go that way. Praying for eyelid surgery. Plus a plastic surgeon will be sewing me up which is great!

As for my mood it is about as good as its going to get. I'm having trouble sleeping at night, very sarcastic, and keeping a brave face for whatever God has decided to do with me. My surgery is scheduled for March 25th so hopefully shortly after that we will have some answers as to what it is.

Lyndsay