Tuesday, April 30, 2013

University of Florida Proton Therapy said....


They said that I have cancer unfortunately. I have seen my neurosurgeon, two radiologist oncologist and now Dr. Malayapa  from the proton therapy institute and he told me I have a disease, and I looked at him like he had three heads. I said what do you mean I have a disease... He was like optic glioma is cancer it is a disease. Obviously when you state to me I have cancer then yea I understand I have a disease but when it came right down to it I had no idea. So I have Optic Glioma Cancer and have to undergo one round of radiation through Proton center. 

Since my stomach was upset and I couldn't stop barfing I was not able to stay and have my mask made. So I have to have a thin slice MRI done when I go back up and a CT done also then they are going to fuse the two images together to find out exactly how my bone structure is so that way they know exactly where they are going to be radiating. Plus,  I have to have my mask made also. I did however hear from Dr. Malayapa that this type of radiation is no better but because of the location and how my tumor is. He said that its best to not radiate part of the brain if I do not have to which I understand. So this will hit only my tumor and that's it. I will have to say that when they said it was cancer I cried like you would not believe. I just couldn't believe that I had seen so many doctors and not one of them tell me that I have cancer. I felt like an idiot!


On the bright side I did get to visit St. Augustine like I have always wanted. Also, I got to step foot in the Atlantic Ocean so I got to cross off some things on my bucket list. When we first drove up to Jacksonville it took forever to get there I think it was like 9 or 10 hours because all we took was nothing but back roads. It was also nice to have a weekend get a way with my honey bear because we had never done anything like that before. Places we visited were Ripleys Believe it or Not the original Museum




 Thats a Fancy Coffin... Crazy right... your dead?
 
I also visited Ponce DE Leons' Fountain of Youth... Totally drank from it. Not that I want to be youthful just to help me with what is wrong with me. But I did however bring back a sword for Lillie... Which she loves and just to be clear its made out of wood. Also, I brought back a bottle of water for Mom and Rick incase they want to be youthful together. LOL!







Our new House what do you think
And Finally, The Atlantic Ocean. The beach is totally different there then it is here. You can park on it... How cool is that? Fort Myers sucks!






 So my mini vacation was really awesome and I had such a great time. Every now and then you totally need a getaway from reality and my Honey Bunches of Oats spoiled me.


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